Imagine living with constant pain or imagine being a parent and knowing that even hugging your child causes pain. I just cannot fathom the strength that these kids and their parents have. If you want to read some amazing blogs visit some of the EB kids parents blogs. Jonah's mom Patrice is an amazing author and Jonah is so cute! Tripp's mom Courtney has shown so much strength and faith it is amazing and Tripp changed the world!
If you want to learn more about EB and what you can do to help please check out DEBRA's website.
If you want to help, please keep an eye out for the Jonah's EB Auction. Last year they had some great items up for bid, It runs February 24th - 27th. Katie, one of the organizers, is still collecting auction items so if you are interested in donating her email address is on the blog and she is amazing and would love your support. Also on the blog is a list of last years items so you can see what kinds of amazing things to expect this year. In fact, my blog design was courtesy of Jenifer who donated last year to the auction!
